Articles/Resources

Irish Haemochromatosis Association Brochure

 

Are you rushing for iron supplements because you’re always feeling tired? This could be totally wrong for you if you have haemochromatosis,
By Margaret Hawkins
Irish Farmers Journal 18 August 2018

 

Charges for haemochromatosis patients raised with Minister Harris
By Priscilla Lynch
Medical Independent 14 September 2017

 

Therapeutic recommendations in HFE hemochromatosis for p.Cys282Tyr (C282Y/C282Y) homozygous genotype” was published recently in the journal Hepatology International with free public access

A resource for GPs has been developed to help provide an understanding of haemochromatosis and the role of genetic testing. This is in the form of an excellent Teaching Plan from General Practice Supervisors Australia (GPSA). 

This resource helps GP registrars develop an approach to the patient with possible iron overload, and encourages an understanding of the role for genetic testing. Included are a number of excellent clinical resources, and links to Haemochromatosis Australia. 
Patients with high iron levels often have a range of concerns and questions. Good patient resources can help patients and their families understand more about what may initially seem a worrying diagnosis. 

GPSA is supported by funding from the Australian Government under the Australian General Practice Training Program

Teaching Aid Hereditary Haemocrhomatosis 

 

Hereditary haemochromatosis Diagnosis and management by Katie Allen
Reprinted from Australian Family Physician Vol. 39, No. 12 December 2010

 

A resource for GPs has been developed to help provide an understanding of haemochromatosis and the role of genetic testing. This is in the form of an excellent Teaching Plan from General Practice Supervisors Australia (GPSA). 

This resource helps GP registrars develop an approach to the patient with possible iron overload, and encourages an understanding of the role for genetic testing. Included are a number of excellent clinical resources, and links to Haemochromatosis Australia. 
Patients with high iron levels often have a range of concerns and questions. Good patient resources can help patients and their families understand more about what may initially seem a worrying diagnosis. 

GPSA is supported by funding from the Australian Government under the Australian General Practice Training Program

Teaching Aid Hereditary Haemocrhomatosis 

 

Haemochromatosis Fact Sheet from Iron Disorders Institute

 

Healthy Eating and Haemochromatosis from the Haemochromatosis UK - excellent resource

 

Ancestral association between HLA and HFE H63D and C282Y genemutations from northwest Colombia

 

Interview with Rita Tynan and meeting details
Westmeath Examiner 17 October 2017

 

Genetics of Haemochromatosis (Source: Haemochromatosis Australia)
http://haemochromatosis.org.au/genetics/

 

Two excellent videos from Haemochromatos Australia
 

  1. This 2-minute video explains haemochromatosis in simple terms and 
  2. the second, longer video at the end which describes haemochromatosis in more detail and has interviews with some of their members talking about their experiences with haemochromatosis.

http://haemochromatosis.org.au/explanation/

 

Birmingham Conference March 2017:

Prof Pierre Brissot - Birmingham Conference - March 2017

 

Business & Finance article 
Early diagnosis and treatment of hereditary haemochromatosis prevents complications and results in a normal life expectancy, writes Margaret Mullett.

 

Genetics Worksheet from Iron Disorders Institute
http://static1.squarespace.com/static/53a43c06e4b0e3d4e75dd4df/t/54a45455e4b040ef97d1fce9/1420055637686/Genetic+Worksheet+HFE+2014.pdf

 

Awareness call as genetic disorder haemochromatosis silently destroys lives
By Gail Bell
Irish News 23 November 2016 

 

http://www.independent.ie/life/health-wellbeing/health-features/am-i-at-risk-of-inheriting-haemochromatosis-35170168.html
Am I at risk of inheriting Haemocrhomatosis?
by Nina Byrnes
Irish Independent 2 November 2016

 

Birmingham Women's NHS Foundation Trust
Hereditary Haemochromatosis
A leaflet for people with hereditary haemochromatosis and their family

 

HSE Resource Document 2016
We are delighted to share this excellent resource document on Haemochromatosis which was produced  by the HSE.  The working party involved in drafting the document  was chaired by Dr Colm Henry of the HSE and the IHA was represented by Dr Maurice Manning, Professor Suzanne Norris and Margaret Mullett. 

 

Fall from a horse leads to more serious diagnosis
by Margaret Langevin  
Connacht Tribune 5 
June 2016

 

Haemochromatosis Your questions answered
Excellent resource from Haemochromatosis Australia

 

Blood Donation Tips
American Red Cross

 

An iron overload 
Margaret Hawkins talks to Colm Kavanagh about his diagnosis Sudden bouts of tiredness, sore joints and dry eyes... 
Irish Country Living 25 June 2016

 

10,000km cycle raises awareness of Haemochromatosis
​​​​​​
Irish Independent Health & Living 17 December 2012

 

The Liver Centre Mater Misericordiae Hospital
Questions & Answers Leaflet on Haemochromatosis from the Liver Centre, Mater Misericordiae Hospital

 

Update on Hereditary haemochromatosis
Dr John Ryan and Prof John Crowe look at recent developments in the understanding and management of hereditary haemochromatosis

 

I felt very Lethargic
Arthur Lappin in conversation with Michelle Mc Donagh
The Irish Times March 9 2010

 

Too much iron nearly killed me
by Rita de Brun
Irish Independent Health and Living 25 February 2008

Treatment of haemochromatosis
by Suzanne Norris 
Irish Medical Times, November 21 2003; this article was also published in Modern Medicine November 2003 and Irish Pharmacist December 2003.)